Niemann-Pick - Musharof Chy
National Niemann-Pick Disease Foundation
Provides in depth education and support for patients and families. Also information about the found...
International Center for Types A and B Niemann-Pick Disease
Provides information on the prevention and treatment of this disorder for patients, physicians and ...
Ara Parseghian Medical Research Foundation
About this foundation whose goal is to find a cure for the devastating Niemann-Pick Type C disease.
Niemann-Pick Disease
Information sheet on this disease including what it is, treatment, prognosis and research being don...
Jacob's Reach
Niemann-Pick Disease Type C public awareness campaign in honor of Jacob Quinn DeMeis. Includes info...
“Our bid to raise awareness of our son’s disease”
The BBC reports on a campaign to raise doctor’s awareness of Niemann-Pick type C.
Think Again Think NP-C campaign
Aiming to reduce the time to diagnosis by supporting healthcare professionals who are unfamiliar wi...
International Niemann-Pick Disease Alliance
An alliance of non-profit support organisations who are associated with the rare group of genetic d...
GeneReviews: Niemann-Pick Disease Type C
Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling an...
Niemann-Pick UK
A charitable organisation offering support and information to families affected by Niemann-Pick dis...