Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising...
Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. Ne...
Canadian based charitable group founded by the parents of Elisa Linton.
Personal site about a child with this disorder. Provides details about the condition.
The parents of Jonah Weishaar, who has the rare genetic disease Sanfilippo Syndrome, are setting up...