Genetic Disorders - Musharof Chy

Musharof Chy

2579 ビュー

11 ヶ月前に作成

National coalition of consumers, professionals, and genetic support groups to voice the common conc...

Musharof Chy

2579 ビュー

11 ヶ月前に作成

Non-profit patient advocacy organization. Support and information provided for those affected by ra...

Musharof Chy

2579 ビュー

11 ヶ月前に作成

A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other relat...

Musharof Chy

2579 ビュー

11 ヶ月前に作成

Support and information for families of children with rare disorders.

Musharof Chy

2579 ビュー

11 ヶ月前に作成

Provides literature, conferences, newsletter, chapter information, and international contacts.

Musharof Chy

2579 ビュー

11 ヶ月前に作成

Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promot...

Musharof Chy

2579 ビュー

11 ヶ月前に作成

Forum for the parents and families of children with Floating Harbor Syndrome.

Musharof Chy

2579 ビュー

11 ヶ月前に作成

A forum for sharing information, increasing public awareness, and building advocacy for further res...

Musharof Chy

2579 ビュー

11 ヶ月前に作成

Message board concerning Charcot-Marie-Tooth Disease.

Musharof Chy

2579 ビュー

11 ヶ月前に作成

Offers support for individuals caring for others affected by Alpha Thalassemia Mental Retardation S...

Musharof Chy

2579 ビュー

11 ヶ月前に作成

Participate in this support group for those pregnant with, parenting, or grieving the loss of child...