Marfan Syndrome - Musharof Chy
National Marfan Foundation
Providing accurate and timely information about the disorder to patients, family members and physic...
Canadian Marfan Association
Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh ...
International Federation of Marfan Syndrome Organizations
A global information center providing links to Organizations around the world.
The Mystery of Akhenaten: Genetics or Aesthetics?
A history of the pharaoh along with theories applied to what he may have had, including Marfan's.
The Marfan Syndrome
A diary of the disease events in the life of someone with this condition. Includes a list of links.
Marfan Syndrome: Does Diet Play a Role
Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
Living With Marfans
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have l...
South African Marfan Syndrome Organisation
Information in English and Afrikaans,including an interactive diagnosis tool that allows for an acc...
Marfans Research Foundation
Irish charity with information on fund raising activities and the condition.
Questions and Answers about Marfan Syndrome
From the National Institutes of Health.
Slovak Marfan Association
The association provides a network of patients, relatives and doctors in Slovakia, informs and help...