A personal account from a family in Australia about Sammy-Joe, who was born with this disorder. Con...
A short technical document discussing the condition. Contains enlarged photographs of damaged hair ...
For families as well as patients who are looking for information, contact and support for people li...
Hair and hair disease information with answers to common questions, treatment details, book reviews...
Uniting parents and individuals whose loved ones have the Trichothiodystrophy Syndrome.
Australian member of parliament, Maria Vamvakinou, announces a day to promote awareness of genetic ...