kb.pub

Rare Disorders - Musharof Chy

Mostrando 1 - 7 de 7 Negócios

European Organisation for Rare Diseases

Alliance of patient associations dedicated to improving the quality of life of all people living wi...

94 visualizações
25 de jan. de 2025

Cherubs

A non-profit support group for the families and medical care providers of children and adults born ...

132 visualizações
25 de jan. de 2025

National Organization for Rare Disorders, Inc.

Information about NORD, its programs, special events and the variety of services offered. Includes ...

790 visualizações
25 de jan. de 2025

Human Growth Foundation

Information about growth-related disorders through education, research, and advocacy. Member driven...

305 visualizações
25 de jan. de 2025

Contact-a-Family

UK charity to support families of disabled children, whatever their condition or disability - from ...

306 visualizações
25 de jan. de 2025

Kindler Syndrome

An article and case study of this rare disease. Includes links.

124 visualizações
25 de jan. de 2025

Office of Rare Diseases

Information on more than 6000 rare diseases, including current research, publications from scientif...

590 visualizações
25 de jan. de 2025