Alliance of patient associations dedicated to improving the quality of life of all people living wi...
A non-profit support group for the families and medical care providers of children and adults born ...
Information about NORD, its programs, special events and the variety of services offered. Includes ...
Information about growth-related disorders through education, research, and advocacy. Member driven...
UK charity to support families of disabled children, whatever their condition or disability - from ...
An article and case study of this rare disease. Includes links.
Information on more than 6000 rare diseases, including current research, publications from scientif...