Epidermolysis Bullosa - Musharof Chy
DebRA of America
Offers information, news, newsletters, support, and resources.
EB Info World
Information, mailing list, pictures, and help for new parents.
DebRA UK
Features organization background, information about the disorder, fundraising and research details,...
EB Medical Research Foundation
A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder....
DebRA Canada
Includes articles, news, and information about this genetic disorder.
DebRA International
Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicat...
Yahoo! Groups: EBworld
Mailing list support group for parents, patients, and those interested in learning about disease.
Cristina's Castle in the Clouds
Information and support for those interested in a skin disorder called epidermolysis bullosa. Messa...
‘Butterfly’ Churchill brothers die of infections
The BBC reports on the death of two brothers with ‘butterfly skin’.
The girl whose skin never heals
The BBC reports on Sohana Collins, who has never known a day without pain. She has a rare genetic d...